SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF
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SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF
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News

Hello My Friends,

After 20 years of working at the Special Friends Foundation, I am retiring to spend more time with my husband, children and mother. I loved meeting all of you through phone calls, emails, and in person. We have shared many celebrations as our friends with RTS have reached milestones, and tears at some of the struggles that they have been overcome. I always say that I have the best job in the world because I get to work with all of you. I experienced with awe of how giving and generous so many people are in donating financially, donating their time, and in supporting others as they go through their journey. We are a very special family and all of you will always be in my heart. 

Starting in July, I will be transitioning my responsibilities to Nicole Buckley. All of you will love her. I know she will be a wonderful friend to you.  

Hugs and much love to all of you,

Michelle


Special Friends Foundation

Group Home

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Chris is the president of the Special Friends Foundation 

overseeing the group home operations and annual fund raiser.


Family Services

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Michelle is the Director of Family Services 

providing assistance to families, along with overseeing the donations and grants.


Special Friends Foundation

Additional Information

The Special Friends Foundation is an extraordinary foundation made possible by the generous donations of our supporters. The Foundation is comprised of the Group Home and Family Services. The Group Home recently opened in Pennsylvania. The Family Services organization began over 20 years ago and has assisted numerous people with rare genetic disorders, particularly Rubinstein Taybi Syndrome (RTS) and their families in obtaining medical and support services. The Special Friends Foundation Family Services is committed to providing families with the information and resources necessary to meet the many challenges of raising a child with RTS.

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Group Home

Mission

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The mission of Special Friends Home is to support Pennsylvanians with developmental disabilities to achieve greater independence and enhanced quality of life.

Vision

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The Special Friends vision is to continue refining a system of quality services and supports delivered in respectful, inclusive environments, to foster competent, evidence-based practice, and to extend our reach to all Pennsylvanians with developmental disabilities.

Goals

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To provide a home environment:


  1. Of the highest quality in emotional and physical support.
  2. That will encourage the residents (both clients and staff).
  3. That will allow all familiar the home to pursue their goals and happiness.
  4. That will inspire confidence in the families of our clients with special needs that they have found the best environment for their loved one.
  5. To construct a platform that will be a model for others pursuing the goal of a great long term living solution for those with special needs.
  6. To share and assist, to the best of our ability, our knowledge and resources with individuals and organizations working with the special needs population.
  7. To prioritize and be accountable to those we serve.


Site Content

Family Services

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Making communication possible

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Providing information about RTS

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Making medical and therapy services possible

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Promoting fun peer activities, adaptive equipment, camps, after-school activities 

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Sponsoring RTS family reunions

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Thank you to all the families contributing to SFF


Family

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Northeast RTS Family Conference 2019

Date: April 26-28, 2019

Contact: Brenda Bon Levine

Delta Hotel Reservations

Midwest RTS Family Reunion Wisconsin

Date:  March 1-3, 2019

Wisconsin Dells

Mid-South Reunion

June 22-23, 2019

Forth Worth, TX


Master File

A master file is a 3-ring binder used to save medical and educational information. 

It also includes some of the RTS Useful Information downloads, found below.

If you would like a binder mailed to you, please complete the form below.


Master File

Request Master File

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Master File Downloads

Master File Information (pdf)

Download

Useful Information

RTS: A Book for Families By Drs. Stevens and Carey (pdf)

Download

The SFF Pamphlet (pdf)

Download

RTS Review Guidelines (pdf)

Download

Top Ten Medical Issues by Lorrie Baxter (pdf)

Download

Where Do I Start (pdf)

Download

What is Rubinstein Taybi Syndrome (pdf)

Download

Writing a letter for financial assistance (pdf)

Download

Best Practices in Residential Models (pdf)

Download

Paying for Medical Care (pdf)

Download

Therapy (pdf)

Download

Early Intervention (pdf)

Download

US School Age 3-21 (pdf)

Download

Transition Childhood to Adulthood (pdf)

Download

You as the advocate (pdf)

Download

RTS Infographic (pdf)

Download

Louis Cup

So happy that you would like to participate in the Louis Cup! 

Please complete the registration form below and click send. 

Then you can donate by selecting the online donation button below, 

mailing a check to 609 Newtown Road, Berwyn, PA 19312.

or gifting at the event via check or credit card.  


Louis Cup

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Donation

Please take a moment and complete the Donation Form, 

so we know who to thank and who to let know a donation has been made in their honor or memory.

Then please proceed to the donation button found by scrolling down on this page. 

Thank you so much for your generosity in being a special friend to a special friend!


Donation

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