Chris is the president of SFF and oversees the group home operations and annual fund raiser.
Michelle is the Director of Family Services and oversees the donations and grants, along with assisting families.
The Special Friends Foundation is an extraordinary foundation made possible by the generous donations of our supporters. The Foundation is comprised of the Group Home and Family Services. The Group Home recently opened in Pennsylvania. The Family Services organization began over 20 years ago and has assisted numerous people with rare genetic disorders, particularly Rubinstein Taybi Syndrome (RTS) and their families in obtaining medical and support services. The Special Friends Foundation Family Services is committed to providing families with the information and resources necessary to meet the many challenges of raising a child with RTS.
The mission of Special Friends Home is to support Pennsylvanians with developmental disabilities to achieve greater independence and enhanced quality of life.
The Special Friends vision is to continue refining a system of quality services and supports delivered in respectful, inclusive environments, to foster competent, evidence-based practice, and to extend our reach to all Pennsylvanians with developmental disabilities.
To provide a home environment:
Making communication possible
Providing information about RTS
Making medical and therapy services possible
Promoting fun peer activities, adaptive equipment, camps, after-school activities
Sponsoring RTS family reunions
Thank you to all the families contributing to SFF
Date: April 26-28, 2019
Contact: Brenda Bon Levine
Date: March 1-3, 2019
No 2019 date as of now
3-Ring Binder to be used to save medical Information.
It also includes some of the RTS Useful Information downloads.
RTS: A Book for Families By Drs. Stevens and Carey (pdf)Download
The SFF Pamphlet (pdf)Download
RTS Review Guidelines (pdf)Download
Top Ten Medical Issues by Lorrie Baxter (pdf)Download
Where Do I Start (pdf)Download
What is Rubinstein Taybi Syndrome (pdf)Download
Writing a letter for financial assistance (pdf)Download
Best Practices in Residential Models (pdf)Download
Paying for Medical Care (pdf)Download
Early Intervention (pdf)Download
US School Age 3-21 (pdf)Download
Transition Childhood to Adulthood (pdf)Download
You as the advocate (pdf)Download
RTS Infographic (pdf)Download
Your support and contributions change people's lives! Thank you!