SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF
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SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF SFF
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Special Friends Foundation

Group Home

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Chris is the president of SFF and oversees the group home operations and annual fund raiser.

Family Services

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Michelle is the Director of Family Services and oversees the donations and grants, along with assisting families.


Special Friends Foundation

Additional Information

The Special Friends Foundation is an extraordinary foundation made possible by the generous donations of our supporters. The Foundation is comprised of the Group Home and Family Services. The Group Home recently opened in Pennsylvania. The Family Services organization began over 20 years ago and has assisted numerous people with rare genetic disorders, particularly Rubinstein Taybi Syndrome (RTS) and their families in obtaining medical and support services. The Special Friends Foundation Family Services is committed to providing families with the information and resources necessary to meet the many challenges of raising a child with RTS.

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Group Home

Mission

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The mission of Special Friends Home is to support Pennsylvanians with developmental disabilities to achieve greater independence and enhanced quality of life.

Vision

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The Special Friends vision is to continue refining a system of quality services and supports delivered in respectful, inclusive environments, to foster competent, evidence-based practice, and to extend our reach to all Pennsylvanians with developmental disabilities.

Goals

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To provide a home environment:


  1. Of the highest quality in emotional and physical support.
  2. That will encourage the residents (both clients and staff).
  3. That will allow all familiar the home to pursue their goals and happiness.
  4. That will inspire confidence in the families of our clients with special needs that they have found the best environment for their loved one.
  5. To construct a platform that will be a model for others pursuing the goal of a great long term living solution for those with special needs.
  6. To share and assist, to the best of our ability, our knowledge and resources with individuals and organizations working with the special needs population.
  7. To prioritize and be accountable to those we serve.


Site Content

Family Services

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Making communication possible

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Providing information about RTS

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Making medical and therapy services possible

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Promoting fun peer activities, adaptive equipment, camps, after-school activities 

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Sponsoring RTS family reunions

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Thank you to all the families contributing to SFF


Family

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Northeast RTS Family Conference 2019

Date: April 26-28, 2019

Contact: Brenda Bon Levine

Delta Hotel Reservations

Midwest RTS Family Reunion Wisconsin

Date:  March 1-3, 2019

Wisconsin Dells

Mid-South Reunion

No 2019 date as of now


Master File

Request Master File

Master File

3-Ring Binder to be used to save medical Information. 

It also includes some of the RTS Useful Information downloads.


Master File Downloads

Master File Information (pdf)

Download

Useful Information

RTS: A Book for Families By Drs. Stevens and Carey (pdf)

Download

The SFF Pamphlet (pdf)

Download

RTS Review Guidelines (pdf)

Download

Top Ten Medical Issues by Lorrie Baxter (pdf)

Download

Where Do I Start (pdf)

Download

What is Rubinstein Taybi Syndrome (pdf)

Download

Writing a letter for financial assistance (pdf)

Download

Best Practices in Residential Models (pdf)

Download

Paying for Medical Care (pdf)

Download

Therapy (pdf)

Download

Early Intervention (pdf)

Download

US School Age 3-21 (pdf)

Download

Transition Childhood to Adulthood (pdf)

Download

You as the advocate (pdf)

Download

RTS Infographic (pdf)

Download

Louis Cup

Register for Louis Cup


Donation

Donation

Thank you!

Your support and contributions change people's lives! Thank you!

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