Hello My Friends,
After 20 years of working at the Special Friends Foundation, I am retiring to spend more time with my husband, children and mother. I loved meeting all of you through phone calls, emails, and in person. We have shared many celebrations as our friends with RTS have reached milestones, and tears at some of the struggles that they have been overcome. I always say that I have the best job in the world because I get to work with all of you. I experienced with awe of how giving and generous so many people are in donating financially, donating their time, and in supporting others as they go through their journey. We are a very special family and all of you will always be in my heart.
Starting in July, I will be transitioning my responsibilities to Nicole Buckley. All of you will love her. I know she will be a wonderful friend to you.
Hugs and much love to all of you,
Chris is the president of the Special Friends Foundation
overseeing the group home operations and annual fund raiser.
Michelle is the Director of Family Services
providing assistance to families, along with overseeing the donations and grants.
The Special Friends Foundation is an extraordinary foundation made possible by the generous donations of our supporters. The Foundation is comprised of the Group Home and Family Services. The Group Home recently opened in Pennsylvania. The Family Services organization began over 20 years ago and has assisted numerous people with rare genetic disorders, particularly Rubinstein Taybi Syndrome (RTS) and their families in obtaining medical and support services. The Special Friends Foundation Family Services is committed to providing families with the information and resources necessary to meet the many challenges of raising a child with RTS.
The mission of Special Friends Home is to support Pennsylvanians with developmental disabilities to achieve greater independence and enhanced quality of life.
The Special Friends vision is to continue refining a system of quality services and supports delivered in respectful, inclusive environments, to foster competent, evidence-based practice, and to extend our reach to all Pennsylvanians with developmental disabilities.
To provide a home environment:
Making communication possible
Providing information about RTS
Making medical and therapy services possible
Promoting fun peer activities, adaptive equipment, camps, after-school activities
Sponsoring RTS family reunions
Thank you to all the families contributing to SFF
Date: April 26-28, 2019
Contact: Brenda Bon Levine
Date: March 1-3, 2019
June 22-23, 2019
Forth Worth, TX
A master file is a 3-ring binder used to save medical and educational information.
It also includes some of the RTS Useful Information downloads, found below.
If you would like a binder mailed to you, please complete the form below.
RTS: A Book for Families By Drs. Stevens and Carey (pdf)Download
The SFF Pamphlet (pdf)Download
RTS Review Guidelines (pdf)Download
Top Ten Medical Issues by Lorrie Baxter (pdf)Download
Where Do I Start (pdf)Download
What is Rubinstein Taybi Syndrome (pdf)Download
Writing a letter for financial assistance (pdf)Download
Best Practices in Residential Models (pdf)Download
Paying for Medical Care (pdf)Download
Early Intervention (pdf)Download
US School Age 3-21 (pdf)Download
Transition Childhood to Adulthood (pdf)Download
You as the advocate (pdf)Download
RTS Infographic (pdf)Download
So happy that you would like to participate in the Louis Cup!
Please complete the registration form below and click send.
Then you can donate by selecting the online donation button below,
mailing a check to 609 Newtown Road, Berwyn, PA 19312.
or gifting at the event via check or credit card.
Please take a moment and complete the Donation Form,
so we know who to thank and who to let know a donation has been made in their honor or memory.
Then please proceed to the donation button found by scrolling down on this page.
Thank you so much for your generosity in being a special friend to a special friend!
Your support and contributions
change people's lives!